About the Me, Not HAE campaign

Me, Not HAE is a global campaign from Shire aimed at raising awareness of Hereditary Angioedema (HAE), a rare genetic condition that may include unpredictable swelling in the extremities, face, abdomen, and throat.1,2,5,6 The campaign also focuses on finding engaging ways to share personal stories from people living with HAE through words, pictures, and videos to help support and inspire the community at large.

The campaign was initially launched on hae day :-) 2014, in collaboration with the International Patient Organization for C1 Inhibitor Deficiencies (HAEi) and the U.S. Hereditary Angioedema Association (HAEA).

Me, Not HAE chalk mural

To mark the launch of the Me, Not HAE campaign, local artists were commissioned to re-create a large chalk art mural design inspired by stories from the HAE community. The murals were initially exhibited in three U.S. cities, including in Chicago (The Navy Pier), San Diego (The Embarcadero), and Washington, D.C. (Union Station).

HAE Day

About hae day :-)

Each year on May 16, hae day :-) raises awareness of HAE among the general public and medical community with the goal of creating an environment in which there is better care and earlier diagnosis.

This initiative, coordinated by the HAEi and its National Member Organizations from around the world, including the HAEA, has spread awareness so that people living with HAE can be better informed about their diagnoses and enjoy the possibility of more opportunities in life.

For more information, please visit www.haeday.org.

HAE Day